Wednesday, April 11, 2012

Fear and pain

Today was PT day... or as we call it, stretchy day...lol the kids are on spring break and that made my day a bit better, I had to deal with a little traffic going to the appointment, but nothing major, we had so much fun watching Ashley push herself in a little car with her legs and then with her arms, after the therapy we stopped by  my sister's in law house, so the kids could play with her kids... when we came back it was already after 4 pm so we went to buy some things to fix dinner, or as we call it... ding dings... 


After day I had to get all the papers for Ashley ready for tomorrow, we have an appointment so I can get Ashley's SSI, I have never done this before and I am so clueless about what I need and what I wont need... 


Ashley has a funny reaction to  pollen her eyes will turn red and she will have a green discharge, but as soon as clean her eyes and get her indoors it will go away... its so unusual it has never happen before, I will call her pediatrician tomorrow and see if she can be seen..


nothing exiting today I know, I had a blah day and a sad night, when I got online and saw that a WS baby got her wings today... I couldn't hold my tears and I had to stop and go to the bathroom so I wouldn't upset the kids... I told my older son that saw me after a few minutes an noticed that I was crying, my Ashley heard it and said its so unfair, and started to cry as well... 


I cant help but worry about my girl, cause we WS moms know that all this issues can show up any time, and how hard and dangerous they can be to our kids.... 


I can only pray and hope that Ashley wont develop any life threatening conditions, cause I don't know if I could deal with that, I'm not strong enough.... 

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