OK, talking with a friend last night made me realize that many have just no idea what is to have a Williams Syndrome child, now, I will talk about how it is here in my house, but remember that every child is different just like typical kids...
I will tell you step by step how my day goes...
I have to put on at least 5 alarms to get myself up and ready to start my day, and the reason why I do that is not because I'm lazy and I don't want to get up, but because I am exhausted most of the time, I will go to sleep every night at around 2 am, and its not because I want to become a vampire or I'm having fun so late, but because I feel like I must make sure that Ashley wont wake up at midnight vomiting, if she does, she wont call me or get up, she will just start crying very quietly... and I also have to make sure that my son doesn't get an asthma attack, they usually come at around 1 am or so... but I cant tell if they will come or not...
OK, so after I get myself up my bed, I will go wake Alder up so he can get ready and he can get the dog out, that's his morning job, in the mean time I will wake Ashley up and get her clothes ready for her approval... Yes, she is really particular about what she will wear, after she did approve the outfit of the day, I will put it on her, everything including socks and shoes, after that I will call her to fix her hair and brush her teeth, then its time to get her book bag and snack ready... if they are riding the bus that morning I will take them to the bus stop and wait with them until the bus gets here, but if we are all going to school they will ride with me...
Once at school I will send my son to class and get someone to come to the office to get Ashley, (cause I am not allowed to take her to class anymore) she has a bad day if I do that... Then I go to the school store and help there, if there is anything else after the store ours that needs to be done I will usually stay and help, on Tuesdays its a different story cause I do the same morning routine but instead of getting someone to walk Ashley to class, I will take her to the store with me, and then after that we will go to her therapy, its a 40 min drive, then if we are not to late to come back to school I will take her back, if not I will just keep her for the day, so after all this I will come home and fix lunch, take my medicine and get the dog out, start my cleaning and check my emails...
At around 4 I will go get the kids, I do have to wait at the bus stop at least 10 minutes, then I will get Ashley off the bus, yes I literally have to take her off that bus... Give them something to eat and ask my son about 100 times to clean his room, do his homework and chores... That usually will drive me insane and I will end up taking my happy pill before getting really upset, if that day is grocery day, we will have to go to the store and buy some groceries... come back home so I can fix dinner...
Once every 3 weeks I have to take Alder to his allergy shoot, and deal with traffic and them fighting all the way back...
after dinner they have time to relax for a little bit before taking a shower, and yes I have to give Ashley a bath cause she cant do it by herself, oh and lets just add all the extra stuff that I have to do with her everyday, like practicing letters, numbers, colors, shapes, playing with her, and wiping her butt... remind her a 100 times a day to wash her hands and flush the toilet... be nice with the ferret and dog, get away from the stove when I'm cooking and to not open the door ever... to get off the chairs and to not jump on the bed, to check on her every 5 minutes to see what is she up to, and to multitask at the same time...
If we have an appointment that day.... well lets just add it to all the things that I just told you about...
On weekends its a bit different, Saturdays we have practice for special Olympics, after that she is exhausted and wont want to do anything else, so we are usually home, cause she cant walk much without asking to be carried, and she is now too heavy for me... Their dad wont help me so everything needs to be done by their favorite person "me"...
On top of all that if F wants me to go to the bank or do something for him, that will just add to my day...
So now you know how a day goes in my house... I almost forgot...
Ashley will ask unstoppable about events like Halloween, her Birthday and other things, EVERYDAY!!!
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